I decided to use myself as a guinea pig and to see what this drug does to my lingering symptoms. This drug is not used or approved in the Western world, so I doubt that you will be able to find a medical professional familiar with this drug.
I had an unpleasant few weeks. I was tired, slept a lot, and got less done. During those weeks, I experienced symptoms that I never had before such as internal buzzing.
Afterwards, I only had mild benefits. My tinnitus went down a level. My PVCs may have gotten better… I still need more time to see how that pans out to see if it returns with a vengeance in a few weeks.
Tilorone has antiviral effects through 2 possible mechanisms:
- Induces the generation of Type I interferons.
- Inhibition of translation of virus-specific proteins in infected cells, thus inhibiting the reproduction of viruses.
If an unhealthy microbiome is the root cause of symptoms, then tilorone may affect the disease by causing permanent changes to the microbiome. Its antiviral effects should disrupt the fitness of some viruses in the body.
Day 1 - 2 X 125mg
Day 3 - 125mg
I stopped because I was sleeping a lot during the day and wanted to go to an upcoming CPSO protest without being tired.
For the second round:
Day 1 - 2 X 125mg
Day 3 - 125mg
Day 5 - 125mg
Day 7 - 125mg
Day 9 - 125mg
Day 11 - 125mg
Day 13 - 125mg
Day 15 - 125mg
Day 17 - 125mg
I have continually taken 4mg ivermectin a day (I don’t want Long COVID) and roughly 1 teaspoon of black seed oil every day.
While taking tilorone, I experienced new symptoms (or old symptoms that came back):
- Sleeping during the day; I’ve had daytime naps before when my vaccine injury was worse
- Insomnia (had trouble falling asleep); I’ve had insomnia before
- Dreams that last a long time
- A weird internal buzzing sensation. It’s not like sitting in a massage chair where you feel vibrations.
- Weird pain in R hand
- My left testicle got dry and scaly. I had this problem with my right testicle when I was trying statins.
- A few involuntary jerks when falling asleep or dozing off. These were much worse when my vaccine injury was bad.
- Morning wood
- Not sure if I had mood disturbances
- Pins and needles when circulation in my arm/shoulder is cut off
My tinnitus got down to its lowest levels ever. Unfortunately, this symptom never bothered me much so it didn’t really improve my life.
My heart started beating better and I got far fewer episodes of irregular heartbeats (maybe <= 20%). The benefits did not outweigh the downsides.
Tinnitus is a level lower than pre-tilorone, and is higher than when I was taking tilorone.
Irregular heartbeat seems to be lower than pre-tilorone.
Very mild internal buzzing. It doesn’t bother me and didn’t happen on most days.
We will see if the benefits stick.
This drug is sold over-the-counter. So it’s supposed to be pretty safe. However, nothing is really all that safe in the vax injured. I got weird side effects from this drug and the sleep issues were unpleasant.
My wiki has a translation of the safety information that comes with the drug. See the tilorone page.
You can buy it online from Russia or Ukraine.
While there is a war in Ukraine, air mail is currently working. I bought mine from a chronic illness patient, who bought it and mailed it to me. You can buy it from https://pharmasstore.com/ or similar websites. You will pay roughly double the retail price. Ukraine does not allow its legitimate pharmacies to sell drugs abroad.
This thread in a ME/CFS forum has information on Russian pharmacies.
I looked at chat history for it and many have tried it, some doctors prescribe it for me/cfs I think someone cured mild me/cfs with it + other antiviral combination, but seems mostly if it gives improvements, then it’s relatively mild.
Cagocel, neovir, tilorone ( known as amiksin in Russia ) - they all are interferon inducers. and although they are not bad drugs , they do not work against cfs in monotherapy and do not give a lasting remission, at least as far as viral patients concerned. I say this from my own experience and I know from the experience of others. I also believe that interferon inducers can only be used by those who do not have a too weakened body for stimulation. And it’ s a question about effect and safety of taking inducers having autoantibodies to interferons. And the second question is about taking induceinducers while having any autoimmune disorder or even only autoreactvity ( autoantibodies without other indicators or diagnosis of autoimmune decease) .
Anyway those people who do not have low levels of interferon do not need these drugs, and those who have low levels may need first to take drugs to replace interferon (interferon alfa and / or gamma, but also not if you have ifn antibodies , at least not for a long time, otherwise autoantibodies will most likely only grow ), and not immediately use their inducers
From Russian modulators I would recommend to try only Tilorone (it really works for many people)
But it’s generally for short courses. Specially when acute infections/crash
Also when it’s a acute infection I use my personal love - interferon alpha in oral form/capsules. Bc it doesn’t not have a big systemic side effects, as other forms of interferons (but of corse it’s still interferon so better be careful and don’t use too much). But I believe it’s hard to buy bc asks cool temperature
I started mostly recovered and seem to have improved my baseline a bit. Hopefully the improvements stick.
Taking tilorone was unpleasant for a few weeks.
I really do not know if this is an experimental drug that’s worth trying for pain, tinnitus, or irregular heartbeat. Maybe. Maybe not.
The improvements did not stick. Irregular heartbeat came back. Tinnitus was probably knocked down a notch but I still had it.
However, take 1 tilorone pill (125mg) a week seems to work better. It balances between doing something against tinnitus without having side effects be a problem.