I’ve been doing some early/preliminary analysis of a long haul survey that I’m running (survey link below). The survey asks about foreign objects in the body, including some that probably don’t matter (e.g. piercings, tattoos).
A potentially interesting finding: joint replacements, metal markers (often placed after breast biopsies), breast implants, and surgical mesh may be more common than in the average person. This paper suggests that 0.8% of American women have had breast implants, which is lower than the 3.1% in this survey (where ~4/5th are female).
Most of the people in the survey don’t have foreign objects in their body (if dental fillings, tattoos, IUDs, etc. aren’t counted). This suggests that there may be many different contributors to long haul.
About 17% of the surveyees reported a small (or large) object in their body like pins, surgical debris, catheters, metal markers/clips, etc. This may be clinically relevant because infected objects can have the same symptoms as long haul.
- Medical professionals may not know how bad the testing is and how dangerous some of these objects are. Some people commit suicide because of the surgical mesh inside their body.
- It is possible that the existing tests for replacement joint infections significantly underestimate the amount of problematic joint replacements out there.
- There are no establishment tests for breast implant illness. Nobody talks about using the tests for replacement joint infections and applying them to breast implant illness. However, research has found that the same types of bacteria and fungi/yeast growing on replacement joints also grow on breast implants.
If you would like to contribute to the survey, please use this pre-filled link (it will fill out the demographics question with the name of this forum).
A science explainer about foreign object infections can be found on the wiki.