Survey on what treatments worked / Let's research our illness because the NIH won’t do it

I will be collecting data on what treatments did and didn’t work for you. The survey is below and takes only 3-9 minutes:

This survey will help us identify the most promising treatments. Doctors can abandon us but we are not on our own because we have each other. Let’s pool our data and start pushing for effective treatment. :fist_right::fist_left:
You will need to sign up for a Google account so that you can add more treatment data in the future.


React19 survey #2 results are here in case you missed it:
That survey asked about what treatments helped. Now we will follow up on that data and figure out which of those treatments are the most promising.